Hi, My Name Is
Jonah
AGE:
10
Years Old.
Motto:
“I can do anything.”
Diagnosis:
End Stage Renal Disease, Kidney Transplant, Cerebral Palsy, G-button, Seizure Disorder, Autism Spectrum Disorder
High School Team:
Dream Team:
Round Rock High School Baseball
Favorite Things:
Sonic Hedgehog. Mario and Mario kart. Roblox. Fortnite. Cheetos. Popcorn. Chocolate. Color-Blue
Jonah was diagnosed in utero with posterior urethral valves (PUV), which resulted in low amniotic fluid and subsequent kidney failure. Consequently, I was placed on bed rest for two months at NAMC. Jonah was born in critical condition and immediately transferred to DCMC, where he remained in the NICU for five months. He began peritoneal dialysis at three days old, but eventually required hemodialysis when peritoneal dialysis was no longer feasible.
At two years old, Jonah received a kidney transplant. In addition to his renal challenges, he has a G-button, a seizure disorder, mild autism, and significant orthopedic issues. To date, he has undergone a total of 25 surgeries. Despite his resilience and toughness, Jonah is a sensitive young boy who harbors fears about his mortality and worries that his time on earth may be limited. He is highly perceptive and often prefers the company of adults.