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Mila's Dream Journal 

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Age 10

Motto: "I Love Everything"
Diagnosis: Microcephaly Lymphedema Chorioretinal Dysplasia
High School Team: Westlake Cheer

8/31/2021

We have spent most of Mila's school years trying to catch up with her sighted peers. When you are born legally blind, there is truly no frame of reference to most things we all see every day. We spend endless hours describing the most simple things in life.

 

During the school year, most of this time is spent catching up on areas covered in school that sighted peers are able to grasp simply. We have used our CC4C funds on private Braille tutoring. Many have never had to understand this area of a medium, but there is another code called Nemeth that is used for math.

 

Along with Braille and Nemeth is the technology that goes with both codes. It truly takes years to master all these techniques. When Covid-19 hit the United States in March of 2020 and the school systems shut down and online, this made an already challenging situation almost unmanageable. When you cannot see your teacher online and you do not have a Teacher of Vision Impairment with all the manipulatives, it makes learning even more difficult.

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With Mila's private Braille tutoring, time at home to learn at her own pace and many hours of working past school hours, it finally paid off. She was assessed at the end of this last school year. She progressed two grades years in one! After talking to other professionals in the vision area, this is incredibly rare.

We've seen this progression aid in Mila's confidence, working with groups at school and start this school year in a very positive way! We did not stop our tutoring over the summer and are continuing to see this kind of progress. We consider this progress and Mila's happiness as a total win. 

Close family and friends know how truly incredible this is since Mila was diagnosed with Microcephaly at birth. We were told she may never walk, talk or even eat solid foods.

We have prayed endlessly, worked harder than we ever thought possible, stayed positive when it was difficult to find joy and let CC4C guide our way towards a completely supported way of healing. We are forever grateful for our CC4C family, our CC4C supporters and all who have helped us along this incredible journey.

October 2018

August 2016

Mila was diagnosed with Microcephaly lymphedema chorioretinal dysplasia and she is legally blind.  This disease causes her to see slightly out of small holes in her eyes. Each day she faces a huge battle due to her lack of vision. Mila has been in occupational, physical and vision based therapies.

 

She will be entering 1st grade this year and is currently learning Braille and large print materials. Mila loves connecting with people her AMAZING attitude and personality bring her friends and family much joy.  The world is truly a better place with Mila in it and we are all better individuals from what she teaches us

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