Dream Journals | CC4C

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Our Dream Journals

Click on a child's name to read milestone updates from our CC4C Children!

Isabella

Diagnosis: PCDH19 Epilepsy

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Sophia

Diagnoses: Chiari Malformation,

Chromosome Duplication 1Q21.1

Diagnosis: Chromosome Deletion

10q22.3q23.2

Diagnosis: PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infection)

Diagnosis: Microcephaly Lymphedema Chorioretinal Dysplasia

Diagnoses: Systemic Juvenile Rheumatoid Arthritis (JRA), Inflammation of the Liver and Lymph Nodes

Diagnoses: ADNP Syndrome, Epilepsy,

Malignant Hypothermia

Diagnosis: ADNP Syndrome

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Diagnosis: Rare Genetic Brain Malformation

Diagnosis: Infantile Scoliosis

Diagnosis: Mitochondrial Depletion Syndrome

Diagnosis: Williams Syndrome

Diagnosis: Beckwith Wiedemann Syndrome

Diagnosis: Monogenic Autoinflammatory Disorder and Hypermobile Ehlers Danlos

Diagnosis: Primary Hyperoxaluria

Hayden 6-2022

Diagnosis: Spina Bifida (SB)/Myelomeningocele, Arnold Chiari II, III & IV Brain Malformation

SOLANA

Diagnosis: Severe Combined Immunodeficiency (SCID)

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SOLICE

Diagnosis: Lennox Gastout Syndrome, Trisomy 5, Cri-du-chat (several others as well)

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