Alexis was  diagnosed with 4H Leukodystrophy at the age of 3 ½ years old. This discovery was followed by full genome sequencing that established the cause as POLR3B mutations.

Alexis’ condition involves a central nervous system deterioration. She has fewer myelin in her brain cells, so everything connecting to her nerves is slower. Her vision problems include: CVI, Myopia and visual processing disorder. Spasticity in her muscles negatively impacts her ability to walk and limits her balance and coordination, so she uses a walker. It is difficult for her to swallow and talk, but she can still eat and verbally communicate. She also has a tremor in her hand which strains her writing and tracing ability. Alexis' condition affects her mood, gives her body fatigue, and will continue to deteriorate before one day taking all of her abilities.

Alexis is very strong-willed! She likes completing tasks and enjoys being outside. She is also fascinated with animals! She is in hippotherapy at Red Arena with horses and developed a deep affection for them. She also loves dress-up and anything princess. She is passionate about music & dance and takes dance classes.  Being around her cousins and friends makes her happy!