Hi, My Name Is
"My Soul is Always Singing"
diagnosed with a rare condition.
High School Team:
Lake Travis theatre
From the time George was able to speak, he complained that his legs and ankles hurt. By the time he was 18 months old, he would complain of pain three to ve times per week, and at times, refuse to walk. We were reassured by both a pediatrician and an orthopedist that this was just "growing pains". At 5 years old, the pain was so intense that he refused to walk which led to some x-rays that showed all was "normal". George's pain continued over the next several years, aring before illnesses, as we continued to search for answers. A er 8 years of looking for a reason behind the pain and demanding more testing, an orthopedist working with a rheumatologist did full body bone scans and two critical blood tests. George's blood tests were both positive. His ANA was high indicating in ammation in his body and his HLA-B27 was positive, a potential genetic marker for juvenile idiopathic arthritis (JIA) with potential ankylosing spondylitis. JIA is an autoimmune and in ammatory disease leading to joint swelling, sti ness, and pain that does not go away. Ankylosing spondylitis is an in ammatory arthritis a ecting the joints of the spine and the pelvis. George is a bright, enthusiastic boy, still enduring many rounds of blood testing, scans, and treatments, looking for more answers. Despite George’s set backs his soul is always singing!