Hi, My Name Is
"Keep Looking Ahead"
Disorder and Hypermobile Ehlers Danlos
High School Team:
Avery experienced monthly fevers during infancy. During these times, his joints and lymph nodes would swell and rashes would appear. After genetic testing, the family discovered that Avery has 2 mutated genes associated with Familial Mediterranean Fever Syndrome (FMF) - but is asymptomatic of FMF's "normal" symptoms. This led to a diagnosis of Monogenic Autoinflammatory Disorder. Additionally, Avery has an aortic and mitral valve insuffiency, caused by faulty connective tissue associated with Hypermobile Ehlers Danlos. Avery has suffered through his conditions since infancy and has seen numerous specialists to help keep him comfortable and without pain. Avery is a bright young boy who loves science, math, and Minecraft. He also loves to golf and throw the football around. He is shy at first, but warms up fast!